My journey began with the 16-week ultrasound while I was pregnant with my son. In one moment, my world changed from excitement and hope, and the next being crushed, scared me. I’ll take you on the journey my family went through, from conception to birth, to the NICU resources I found in my extensive research. There’ve been scary moments and wonderful moments. This road has certainly been life-changing. It’s my hope and my intention that I can make this road easier for those of you who travel it after me.